What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand systemic sclerosis. Funded by the SRF, CONQUER collects clinical data and biosamples from people newly diagnosed with scleroderma, giving researchers the tools they need to discover better treatments and, eventually, a cure. Learn more about ho
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What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co
Scleroderma Research Foundation. Scleroderma Research Foundation · Original audio. What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand ...
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The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
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The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
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The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
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The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
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Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
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November is Pulmonary Arterial Hypertension (PAH) Month. To kick off things off, we’re featuring Nola, who candidly shares her journey living with both scleroderma and PAH in this video. "Being told you have not one, but two rare diseases is difficult," she says. "I had no idea what either one of these illnesses were. Awareness of these diseases helps get better research and can give you a better quality of life." PAH affects 8%-17% of people with scleroderma and can lead to serious health chall
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Perseverance: It’s a trait that describes Ian Crego, a Michigan high school student with scleroderma, and so many others with scleroderma worldwide. Learn how the Scleroderma Foundation supports the community and see how to get involved this June Awareness Month. https://bit.ly/3wPIZws | National Scleroderma Foundation
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